522_boybooksUpon you or your child being diagnosed with an illness, you may find that you have many questions to be answered, and you may be a little confused. You’re not alone. Across America, many people are living with the same illness. One of the best decisions you can make at this time is to educate yourself– and we are available to help you in this process. Together, we will form a partnership that will play a vital role in your or your child’s well being.

Here you can find a compilation of links to websites that can provide you with information concerning the diagnosis, the symptoms, and the various treatments. Many of these websites can direct you to online support groups so that you can correspond with people who are sharing an experience similar to yours. The more you know, the less frightening this experience will be.

At Pediatric Neurology PA, we believe that knowledge is power, and we strive to empower you and your family.

www.autism-society.org (Autism Society of America)
www.ucf-card.org (Center for Autism an Related Disabilities)
www.autismfl.com (Autism Society of Florida)
www.card.ufl.edu (Center for Autism and Related Disabilities)
www.autism.org (Autism Collaboration)

www.epilepsy-cf.org (Epilepsy Association of Central Florida)
www.epilepsyfoundation.org (Epilepsy Foundation)
www.epilepsy.com (Epilepsy Therapy Project)

www.achenet.org (American Headache Society)
www.ahsnet.org (American Headache Society)
www.migraines.org (MAGNUM: The National Migraine Association)
www.headaches.org (National Headache Foundation)

www.aacap.org (American Academy of Child Adolescent Psychiatry)
www.cnshealthcare.com (Clinical Neuroscience Solutions)
www.adolpsych.org (American Society for Adolescent Psychiatry)

General Neurology Info
www.healthfinder.gov (National Health Information Center)
www.childneurologysociety.org (Child Neurology Society)
www.nlm.nih.gov (U.S. National Library of Medicine)
www.nlm.nih.gov/medlineplus (National Health Information Center)
www.ncld.org (National Center for Learning Disabled)
www.ninds.nih.gov (National Institute of Neurological Disorders and Stroke)
www.neurologychannel.com (Neurology Channel – Video links)
www.rarediseases.org (National Organization for Rare Disorders)

Internet Drug Index
www.rxlist.com (RxList – The Internet Drug Index)

Other Neurological Links
www.geneticalliance.org (Genetic Alliance)
www.mda.org (Muscular Dystrophy Association, Helping Jerry’s Kids)
www.ataxia.org (Ataxia)
www.charcot-marie-tooth.org (Charcot Marie Tooth)
www.nfxf.org (Fragile X)
www.umdf.org (Mitochondrial Disorders)
www.wemove.org (Movement Disorders)
www.mdausa.org (Muscular Dystrophy)
www.ctf.org (Neurofibromatosis)
www.neuropathy.org (Neuropathy)
www.rettssyndrome.org (Retts Syndrome)
www.tsa-usa.org (Tourette’s Syndrome)
www.tsalliance.org (Tuberous Sclerosis)

Learning Sites for Kids
http://faculty.washington.edu/chudler/neurok.html (Neuroscience for Kids)
www.adolescenthealth.org (The Society for Adolescent Medicine)
www.youramazingbrain.org.uk (Your Amazing Brain)